Here are some links complete with information explaining my conditions & current treatments. I also included some blogs written by my spoonie friends with the same conditions. I bolded & put stars next to my newest diagnoses. ♥
- My Primary Immunodeficiency – Common Variable Immunodeficiency & the medications I receive biweekly.
What is Common Variable Immunodeficiency?
http://www.gammaplex.com/about-gammaplex-5-percent
- hEDS or Hypermobility Ehlers Danlos Syndrome & conditions caused by it
Botox for Treatment of Chronic Migraines
- My friend Rachel does an amazing job explaining EDS, chronic migraines & the brain fog I so often talk about in these three blog entries.
https://positivelyrachel.com/2016/12/30/chronic-migraines-more-than-just-a-headache/
https://positivelyrachel.com/2017/02/28/ehlers-danlos-syndrome/
https://positivelyrachel.com/2017/01/17/brain-fog/
- Dystautonomia, Postural Orthostatic Tachycardia Syndrome & the central line I have to receive daily IV saline infusions to help manage it.
What is Postural Orthostatic Tachycardia Syndrome
- Gastroparesis or Partial paralysis of stomach
- Superior Mesenteric Artery Syndrome **
What is Superior Mesenteric Artery Syndrome?
- Celiac Disease
- Mast Cell Activation Syndrome
What is Mast Cell Activation Syndrome?
- Eosinophilic Esophagitis (EoE), Eosinophilic Gastroenteritis (EGE) and Eosinophilic Gastritis (EG) **
What are Eosinophil- Associated Diseases
- Idiopathic Angioedema**
- Food Allergies –
Food hypersensitivity by inhalation
- Endometriosis
- This link contains information from the website of my surgeon who will be doing my endometriosis excision/exploratory surgery in May
Simply Macy 