About My Conditions

Here are some links complete with information explaining my conditions & current treatments. I also included some blogs written by my spoonie friends with the same conditions. I bolded & put stars next to my newest diagnoses. ♥


  • My Primary Immunodeficiency – Common Variable Immunodeficiency & the medications I receive biweekly.

What is Common Variable Immunodeficiency?

What is IVIG?



  • hEDS or Hypermobility Ehlers Danlos Syndrome & conditions caused by it

What is EDS?

Craniocervical Instability

Occipital Neuralgia

Botox for Treatment of Chronic Migraines

  • My friend Rachel does an amazing job explaining EDS, chronic migraines & the brain fog I so often talk about in these three blog entries.





  • Dystautonomia, Postural Orthostatic Tachycardia Syndrome & the central line I have to receive daily IV saline infusions to help manage it.

What is Dysautonomia?

What is Postural Orthostatic Tachycardia Syndrome

What is a Hickman Catheter?


  • Gastroparesis or Partial paralysis of stomach

What Is Gastroparesis?

Symptoms of Gastroparesis


  • Superior Mesenteric Artery Syndrome **

What is Superior Mesenteric Artery Syndrome?


  • Celiac Disease

What is Celiac disease?


  • Mast Cell Activation Syndrome

What is Mast Cell Activation Syndrome?


  •  Eosinophilic Esophagitis (EoE), Eosinophilic Gastroenteritis (EGE) and Eosinophilic Gastritis (EG) **

What are Eosinophil- Associated Diseases


  • Idiopathic Angioedema**

What is Angioedema?

  • Food Allergies –

Corn Food Allergy

Hidden Corn Based Ingredients

Food hypersensitivity by inhalation


  • Endometriosis

What is Endometriosis?

  • This link contains information from the website of my surgeon who will be doing my endometriosis excision/exploratory surgery in May