♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ ♥ Today is Rare Genes Day… I should probably make a post about the several rare genetic conditions and diseases I deal with daily like I’ve done so many times in the past. But this year, all I can think about on this day is how… Continue reading My Wish For My Fellow Rare Disease Warriors✨
Category: Spoonie life
Love Letter to My Friends
For lots of people with chronic illness receiving a diagnosis & finding out that there is no cure normally results in many friends walking away. Some get overwhelmed by the seriousness of what's happening. Others simply have no idea what to say to you anymore and get sick of trying to make plans with you… Continue reading Love Letter to My Friends